"being the caregiver means being the responsible one!
The sooner we learn this, realize it as "the major truth" and accept the fact . . . the easier our journey will be!
Do Not expect them to be the responsible one! Yes, they may be from time to time, but that has nothing to do with your responsibilities.
We already know Parkinson’s damages their brain, the Whole Brain, but how quick and/or which part of it will be damaged cannot be fully predicted! When we don't fully know the cause, we can't fully predict the outcome!
As Parkinson’s progresses, we must step up and become more involved and, at times proactive, thus allowing our guys to continue their hobbies and live their lives to their maximum ability.
No more than we would leave a toddler in peril, we must also do the same for our loved one. These are facts we must accept. We must be vigilant, always!
Being shocked, astounded, or hurt by any of their actions comes from denial or lack of acceptance of the damage PD can and will do!
We must always make sure we are being the responsible one! It is vital! It's the first real duty, the first action of a caregiver. We are their first line of defense!
This! This is the how so many make it through this journey as a caregiver, especially a spousal one.
Caring for someone with Parkinson's often means you become their heart and soul, yes, "them".
"The Dawning of Realities"
Parkinson's Better Halves quickly knew our collective mission was not only to support each other but to teach the world about the "other side" of Parkinson's, the often ugly side! We wanted the world to see the collateral damage caused by Parkinson's. Our hearts' desire was for our family and friends to understand, to see our struggles, and, most of all, to hear our cry for help.
We must educate "The Circle of Care".
The messages below are not ones of hope; they are ones filled with struggles, despair, and brokenness. PBH-ORG.COM is asking for you to step into "The Circle of Care" and support our mission. Without you, we cannot provide those with Parkinson's a higher level of caregivers, and the world will not properly care for those with Parkinson's. Again, we need you!